A 4 year old boy named Ismail Ali is one of those in the world suffering from Crigler-Najjar syndrome, like others he has to spend over 20 hours daily in bright blue light so his bilirubin builds up and he can stay alive.
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUCwqnRygK7YFddQ8XuB0XRNNsc4PFrFCk4-9Njw7RbPo0YKfzm3teKgOBTFMKVkpuN07qNV8o0GbgKe1TjkrVujUjuWHDjUzbFtIMpF5j6nPn44wOBo73jkqeQ47exYtuojykA4yMbz4/s400/S+BOY.jpg) |
Ismail Ali |
Young Ismail is a very cheerful and energetic but it's unfortunate that his live is at risk with this deadly syndrome.
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